Monday, March 28, 2011

Dr. Levine's Exercise Study

     I am currently in a study for a supposed cure for POTS. It is being conducted out of the Institute for Exercise & Environmental Medicine in Dallas, Texas. If you are interested in becoming a part of the study you can e-mail Tiffany VanGundy, Senior Research Associate, at THRIEEMPOTSRegistry@TexasHealth.org.
     The exercise program was first used on astronauts when they came back from space, because their bodies would also have trouble re-adjusting to pumping their blood in gravity. The program was used to increase the muscle tone in their legs to help pump the blood to their brains more efficiently. And, the best part is, you won't have to take any medicine!
     Before becoming a part of the program, the hospital in Dallas will send the information to your doctor about a 10 minute standing test where he will measure your heart rate and blood pressure standing and lying down. Then your doctor can send in those results back to the hospital in Dallas and they will make sure you fit the criteria for the study. If you do, they will then send the information of the study to your doctor and you can begin the program! (p.s. you won't actually have to travel to Dallas to become a part of the program, you can do it all from where you live)
     It is a three month long program, and ,by the end of the program, most of the patients in the study can barely be classified as having POTS anymore. Becoming a part of the study is a big commitment, though, because you aren't just doing this for yourself, you are doing it for the research to help future POTS patients.
    The program consists of exercises done sitting down, but as you get stronger, you move to exercising standing up. Workouts consist of cardio about 3 days a week, and weight training about 2. Once you become a part of the program, they will tell you what machines to use at the gym and what exercises to do for cardio workouts. They will also tell you what your desired heart rate zones should be for when you do cardio. (You will have to buy a heart rate monitor for these workouts.)

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*DISCLAIMER* This blog should not be used as a diagnosis or a treatment plan. If you have POTS or think you may have POTS, consult your doctor about what you should do. This blog is only for the purpose of giving some information and support for people with POTS and to document my progress in the exercise program.